hey, y'all
Apr. 12th, 2021 07:42 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
1. I have been in a pissy mood since my neurology appointment. I got my hopes up for a diagnosis, and I shouldn't have. To be fair, the neuro did say I have all the symptoms of MS except brain lesions, and I could just be lucky enough that none of my episodes have scarred my brain yet. He wants to continue to monitor me. I am still getting the eye CT exam, and that might yield something; he said if it did show evidence of optic neuritis, he'd be comfortable diagnosing me with MS. But I suspect that it won't reveal anything because no tests ever do. So I've been playing the whole is it all in my head? am I just imagining these symptoms? or am I lazy and looking for a justification? or attention seeking? or too fat? or crazy? game. But in the end, it doesn't matter. I've got to live with what's going on regardless of its origin, and I'm on my own with dealing with it.
So I'm doing the whole angry-mourning thing, and once I go to the eye doc, I'm just putting it to bed. No more seeking a diagnosis without the emergence of new or more intense symptoms. I'm really tired of digging a hole, throwing money into it, and setting it on fire. It is time for Project Acceptance and Endurance to begin.
2. Shot #2 kicked our asses on Saturday. Twelve hours after the shot my arm hurt so badly that it is the worst physical pain I've had outside childbirth. Which is, ah, saying something. Fortunately, the pain responded to tylenol which kicked it back to a manageable level. Both of us had fevers, body aches, and general tiredness on Sunday; I also had a terrible headache. Today, I'm still tired but pretty much fine. I'm still having the heightened neuropathy in my leg that started after the shot, and my arm still hurts a little (I've got a big, hot rash over the injection site), but I'm mostly fine. Josh is mostly fine now, too, but it took him a little longer to get that way than I did.
3. In other random news, I forgot to post about when I had the MRI. I found it strangely soothing and trancelike. It did not sound at all like the MRIs I remember from 25 years ago. Instead of a hammer beating on a metal drum, it sounded more like music to me; there were definitely tonal shifts and varying rhythms. It was oddly hypnotic. If I hadn't been worried about being completely still, I think I would have fallen asleep.
3. Have some awesome stuff to look at.
Thanks to
amejisuto, I now know that Star Trek perfumes exist. I don't even know what to say about these, y'all. I mean Red Shirt? Pon Farr? Somebody did not think through the marketing strategy. *dies laughing*
Cuckoo Clocks by
executrix
Blake's 7
Blake/Gan
This is full of all the hallmarks of
executrix's writing: humor, spot-on dialogue, dangerous wit; it's extremely funny in places, and then it's very much not. Highly recommended.
So I'm doing the whole angry-mourning thing, and once I go to the eye doc, I'm just putting it to bed. No more seeking a diagnosis without the emergence of new or more intense symptoms. I'm really tired of digging a hole, throwing money into it, and setting it on fire. It is time for Project Acceptance and Endurance to begin.
2. Shot #2 kicked our asses on Saturday. Twelve hours after the shot my arm hurt so badly that it is the worst physical pain I've had outside childbirth. Which is, ah, saying something. Fortunately, the pain responded to tylenol which kicked it back to a manageable level. Both of us had fevers, body aches, and general tiredness on Sunday; I also had a terrible headache. Today, I'm still tired but pretty much fine. I'm still having the heightened neuropathy in my leg that started after the shot, and my arm still hurts a little (I've got a big, hot rash over the injection site), but I'm mostly fine. Josh is mostly fine now, too, but it took him a little longer to get that way than I did.
3. In other random news, I forgot to post about when I had the MRI. I found it strangely soothing and trancelike. It did not sound at all like the MRIs I remember from 25 years ago. Instead of a hammer beating on a metal drum, it sounded more like music to me; there were definitely tonal shifts and varying rhythms. It was oddly hypnotic. If I hadn't been worried about being completely still, I think I would have fallen asleep.
3. Have some awesome stuff to look at.
Thanks to
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Cuckoo Clocks by
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Blake's 7
Blake/Gan
This is full of all the hallmarks of
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
no subject
Date: 2021-04-13 12:20 am (UTC)Especially since the shot kicked your bum. That sounds painful. I can't believe I'm jealous that you got one since I can't get it. I'm too allergic to too many things.
Glad the MRI went okay! That does sound relaxing.
HEE! Glad you liked the perfume.
no subject
Date: 2021-04-13 11:21 am (UTC)I appreciate it, my friend.
I'm sorry you can't get the vaccine. I hope enough of us do our part who can get it to make it safer for you.
That perfume page just made my day. So terribly silly. LOL
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Date: 2021-04-13 12:45 am (UTC)no subject
Date: 2021-04-13 11:22 am (UTC)no subject
Date: 2021-04-13 01:15 am (UTC)Okay, thank you. Whenever I tell people I nearly fell asleep when I had my MRI (gynecological), they can't believe it. I am thrilled to know I'm not the only person that's happened to.
no subject
Date: 2021-04-13 11:23 am (UTC)Thank you.
And yes! I gather we are in a small group, but it really did sound like electronic music to me. I'm not claustrophobic at all, so I didn't have that panic to contend with either.
no subject
Date: 2021-04-13 01:30 am (UTC)no subject
Date: 2021-04-13 11:23 am (UTC)I hate how much of it is luck and chance.
But I've spent too much money, time, and emotional capital chasing this, and it's time to stop for a while at least. I don't think it's good for me at this point.
no subject
Date: 2021-04-13 01:30 am (UTC)So sorry you all had such a hard time with the vaccines!!! Yikes!
Sending you ALL THE GOOD VIBES.
ALSO: YOU ARE NOT CRAZY
no subject
Date: 2021-04-13 11:24 am (UTC)*hugs*
Thank you.
Got your texts this morning; will text back when it's not o'dark thirty.
no subject
Date: 2021-04-13 01:30 am (UTC)... Why in the world would I want to smell like Pon Farr? I imagine the notes to be something like unwashed skin, dry stone, the smoke of ritual torches, and blood. Hm, once I put it that way, I could see BPAL putting that together. It still wouldn't be something I'd like, but I imagine someone would.
BPAL would also do a better Red Shirt perfume.
no subject
Date: 2021-04-13 04:26 am (UTC)I have never, ever, for a minute thought that you were crazy or malingering. One of the fun things about being a medical doctor (as well as the money) is that if you don't have a friggin' clue about how to help your patient you can just insult them instead!
Thank you for the rec! The Gauda Prime Social Club is rather more favorable toward Blake and Gan than other B7 spaces where I've found myself, so they just sort of drifted together...
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Date: 2021-04-13 03:02 am (UTC)*hugs*
no subject
Date: 2021-04-13 11:28 am (UTC)Thank you!
I'm almost back to normal this morning. Full range of motion back in the arm, rash really faded.
no subject
Date: 2021-04-13 04:08 am (UTC)no subject
Date: 2021-04-13 11:28 am (UTC)Thank you. :)
no subject
Date: 2021-04-13 04:53 am (UTC)I... I don't know about Red Shirt, but I am pretty sure there'd be a market for Pon Farr. >:D
Trouble Is, We Only Get It in on Sundays
Date: 2021-04-13 05:14 am (UTC)Re: Trouble Is, We Only Get It in on Sundays
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Date: 2021-04-13 06:52 am (UTC)I hope it's not MS hon because that is bad.
When I had the pain from my first shot I used an ice pack and it helped. I have to wait till the 29th for the second shot. I'm not looking forward to that since everyone has been saying it sucks.
no subject
Date: 2021-04-13 11:31 am (UTC)Josh made me put an ice pack on it last night, and that really helped. It's almost back to normal today.
*hugs*
I hope you do well with the second dose.
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Date: 2021-04-13 12:11 pm (UTC)no subject
Date: 2021-04-13 08:45 pm (UTC)Thank you.
no subject
Date: 2021-04-13 12:50 pm (UTC)no subject
Date: 2021-04-13 09:29 pm (UTC)That's exactly the right thing to say.
Thank you.
no subject
Date: 2021-04-13 01:09 pm (UTC)So sorry the vaccine kicked your butt! Glad you're fine other than still being tired.
no subject
Date: 2021-04-13 03:00 pm (UTC)(no subject)
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Date: 2021-04-13 01:26 pm (UTC)I'm glad you're feeling mostly better after jab #2, though I'm not looking forward to Louisa having that, given what happened to her after jab #1.
no subject
Date: 2021-04-15 11:32 am (UTC)Thank you so much.
It's just been so much I've had to do and invest, and it sucks. I think a lot about what must happen to people who don't have Ph.D.s, who don't have adequate disposable income or insurance or transportation, who don't have flexible jobs, and it makes me really fucking sad and disgusted. If it's been this hard and demoralizing for me, how much more so for the marginalized of our society?
I hope Louisa will do okay. *hugs*
no subject
Date: 2021-04-13 01:49 pm (UTC)I'm moving in the other direction, from "acceptance and accommodation" mode to the the mode where I engage with the medical-insurance complex for insight and other care options, and it's already exhausting and emotionally precarious. *support*
no subject
Date: 2021-04-15 11:33 am (UTC)I hope you are seen and heard and taken seriously. I hope you are treated with compassion and that you get what you need.
I am always cheering for you.
no subject
Date: 2021-04-13 06:59 pm (UTC)I'm so sorry to hear that! I'm glad you're both feeling better now.
I think I would be the same with the MRI. I tend to close my eyes when I'm resting on exam tables, even at the dentist, and I'd fall asleep if I didn't have to keep my mouth open, lol!
no subject
Date: 2021-04-15 11:33 am (UTC)Thank you.
I am the same way. LOL I'm so tired all the time that closing my eyes is the danger zone.
no subject
Date: 2021-04-13 07:48 pm (UTC)Ask the Experts?
Date: 2021-04-13 08:00 pm (UTC)*I mean, YOU don't because I just made it up
Re: Ask the Experts?
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Date: 2021-04-13 09:11 pm (UTC)My sympathies on the reaction to the shot because I had the same thing. Ack!
no subject
Date: 2021-04-15 11:35 am (UTC)Thank you.
It's just so hard not to doubt myself.
Man, I am still exhausted; I think the shot precipitated a flare-up. Boo.
no subject
Date: 2021-04-14 01:57 am (UTC)I'm sorry things didn't turn out as hoped, but I know you have a ton of determination you can throw at Living Your Best Life, SO THERE WORLD. Hugs!
no subject
Date: 2021-04-15 11:36 am (UTC)Thank you.
I love that story about your granddad. :)
Closing my eyes is the danger zone, you know? LOL
And yes. I can control some things about my life, and it's high time I started doing that.
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Date: 2021-04-14 06:58 am (UTC)no subject
Date: 2021-04-15 11:36 am (UTC)Thank you, sweetie.
It's just so hard not to doubt myself.