hey, y'all
Apr. 12th, 2021 07:42 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
1. I have been in a pissy mood since my neurology appointment. I got my hopes up for a diagnosis, and I shouldn't have. To be fair, the neuro did say I have all the symptoms of MS except brain lesions, and I could just be lucky enough that none of my episodes have scarred my brain yet. He wants to continue to monitor me. I am still getting the eye CT exam, and that might yield something; he said if it did show evidence of optic neuritis, he'd be comfortable diagnosing me with MS. But I suspect that it won't reveal anything because no tests ever do. So I've been playing the whole is it all in my head? am I just imagining these symptoms? or am I lazy and looking for a justification? or attention seeking? or too fat? or crazy? game. But in the end, it doesn't matter. I've got to live with what's going on regardless of its origin, and I'm on my own with dealing with it.
So I'm doing the whole angry-mourning thing, and once I go to the eye doc, I'm just putting it to bed. No more seeking a diagnosis without the emergence of new or more intense symptoms. I'm really tired of digging a hole, throwing money into it, and setting it on fire. It is time for Project Acceptance and Endurance to begin.
2. Shot #2 kicked our asses on Saturday. Twelve hours after the shot my arm hurt so badly that it is the worst physical pain I've had outside childbirth. Which is, ah, saying something. Fortunately, the pain responded to tylenol which kicked it back to a manageable level. Both of us had fevers, body aches, and general tiredness on Sunday; I also had a terrible headache. Today, I'm still tired but pretty much fine. I'm still having the heightened neuropathy in my leg that started after the shot, and my arm still hurts a little (I've got a big, hot rash over the injection site), but I'm mostly fine. Josh is mostly fine now, too, but it took him a little longer to get that way than I did.
3. In other random news, I forgot to post about when I had the MRI. I found it strangely soothing and trancelike. It did not sound at all like the MRIs I remember from 25 years ago. Instead of a hammer beating on a metal drum, it sounded more like music to me; there were definitely tonal shifts and varying rhythms. It was oddly hypnotic. If I hadn't been worried about being completely still, I think I would have fallen asleep.
3. Have some awesome stuff to look at.
Thanks to
amejisuto, I now know that Star Trek perfumes exist. I don't even know what to say about these, y'all. I mean Red Shirt? Pon Farr? Somebody did not think through the marketing strategy. *dies laughing*
Cuckoo Clocks by
executrix
Blake's 7
Blake/Gan
This is full of all the hallmarks of
executrix's writing: humor, spot-on dialogue, dangerous wit; it's extremely funny in places, and then it's very much not. Highly recommended.
So I'm doing the whole angry-mourning thing, and once I go to the eye doc, I'm just putting it to bed. No more seeking a diagnosis without the emergence of new or more intense symptoms. I'm really tired of digging a hole, throwing money into it, and setting it on fire. It is time for Project Acceptance and Endurance to begin.
2. Shot #2 kicked our asses on Saturday. Twelve hours after the shot my arm hurt so badly that it is the worst physical pain I've had outside childbirth. Which is, ah, saying something. Fortunately, the pain responded to tylenol which kicked it back to a manageable level. Both of us had fevers, body aches, and general tiredness on Sunday; I also had a terrible headache. Today, I'm still tired but pretty much fine. I'm still having the heightened neuropathy in my leg that started after the shot, and my arm still hurts a little (I've got a big, hot rash over the injection site), but I'm mostly fine. Josh is mostly fine now, too, but it took him a little longer to get that way than I did.
3. In other random news, I forgot to post about when I had the MRI. I found it strangely soothing and trancelike. It did not sound at all like the MRIs I remember from 25 years ago. Instead of a hammer beating on a metal drum, it sounded more like music to me; there were definitely tonal shifts and varying rhythms. It was oddly hypnotic. If I hadn't been worried about being completely still, I think I would have fallen asleep.
3. Have some awesome stuff to look at.
Thanks to
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Cuckoo Clocks by
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Blake's 7
Blake/Gan
This is full of all the hallmarks of
![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
no subject
Date: 2021-04-13 12:20 am (UTC)Especially since the shot kicked your bum. That sounds painful. I can't believe I'm jealous that you got one since I can't get it. I'm too allergic to too many things.
Glad the MRI went okay! That does sound relaxing.
HEE! Glad you liked the perfume.
no subject
Date: 2021-04-13 12:45 am (UTC)no subject
Date: 2021-04-13 01:15 am (UTC)Okay, thank you. Whenever I tell people I nearly fell asleep when I had my MRI (gynecological), they can't believe it. I am thrilled to know I'm not the only person that's happened to.
no subject
Date: 2021-04-13 01:30 am (UTC)no subject
Date: 2021-04-13 01:30 am (UTC)So sorry you all had such a hard time with the vaccines!!! Yikes!
Sending you ALL THE GOOD VIBES.
ALSO: YOU ARE NOT CRAZY
no subject
Date: 2021-04-13 01:30 am (UTC)... Why in the world would I want to smell like Pon Farr? I imagine the notes to be something like unwashed skin, dry stone, the smoke of ritual torches, and blood. Hm, once I put it that way, I could see BPAL putting that together. It still wouldn't be something I'd like, but I imagine someone would.
BPAL would also do a better Red Shirt perfume.
no subject
Date: 2021-04-13 03:02 am (UTC)*hugs*
no subject
Date: 2021-04-13 04:08 am (UTC)no subject
Date: 2021-04-13 04:26 am (UTC)I have never, ever, for a minute thought that you were crazy or malingering. One of the fun things about being a medical doctor (as well as the money) is that if you don't have a friggin' clue about how to help your patient you can just insult them instead!
Thank you for the rec! The Gauda Prime Social Club is rather more favorable toward Blake and Gan than other B7 spaces where I've found myself, so they just sort of drifted together...
no subject
Date: 2021-04-13 04:53 am (UTC)I... I don't know about Red Shirt, but I am pretty sure there'd be a market for Pon Farr. >:D
Trouble Is, We Only Get It in on Sundays
Date: 2021-04-13 05:14 am (UTC)no subject
Date: 2021-04-13 06:52 am (UTC)I hope it's not MS hon because that is bad.
When I had the pain from my first shot I used an ice pack and it helped. I have to wait till the 29th for the second shot. I'm not looking forward to that since everyone has been saying it sucks.
no subject
Date: 2021-04-13 11:21 am (UTC)I appreciate it, my friend.
I'm sorry you can't get the vaccine. I hope enough of us do our part who can get it to make it safer for you.
That perfume page just made my day. So terribly silly. LOL
no subject
Date: 2021-04-13 11:22 am (UTC)no subject
Date: 2021-04-13 11:23 am (UTC)Thank you.
And yes! I gather we are in a small group, but it really did sound like electronic music to me. I'm not claustrophobic at all, so I didn't have that panic to contend with either.
no subject
Date: 2021-04-13 11:23 am (UTC)I hate how much of it is luck and chance.
But I've spent too much money, time, and emotional capital chasing this, and it's time to stop for a while at least. I don't think it's good for me at this point.
no subject
Date: 2021-04-13 11:24 am (UTC)*hugs*
Thank you.
Got your texts this morning; will text back when it's not o'dark thirty.
no subject
Date: 2021-04-13 11:26 am (UTC)Thank you.
I think BPAL would have so much fun coming up with Star Trek perfumes, but I also don't think I'd want to smell like most of them LOL. I think Red Shirt would have to have the ozone note of phaser fire.
no subject
Date: 2021-04-13 11:27 am (UTC)Thank you, my friend. It is just really hard to constantly doubt my own perceptions of my experience. It feels a little pathetic to need external validation so much, but I do.
I'm glad you're having so much fun with the Social Club; they seem like a pretty fantastic group of fans.
no subject
Date: 2021-04-13 11:28 am (UTC)Thank you!
I'm almost back to normal this morning. Full range of motion back in the arm, rash really faded.
no subject
Date: 2021-04-13 11:28 am (UTC)Thank you. :)
no subject
Date: 2021-04-13 11:29 am (UTC)True. LOL
If I was going to make a Star Trek perfume, I'd call it Klingon Blood Wine, and the predominant note would be birch bark (which is a kind of smoky yummy smell).
Re: Trouble Is, We Only Get It in on Sundays
Date: 2021-04-13 11:30 am (UTC)no subject
Date: 2021-04-13 11:31 am (UTC)Josh made me put an ice pack on it last night, and that really helped. It's almost back to normal today.
*hugs*
I hope you do well with the second dose.
no subject
Date: 2021-04-13 12:11 pm (UTC)